Friday, December 30, 2016

New Year - another chance for us to make it right

It is the last day of 2016.  I look back on it and realize that it was not all bad.  I have been to hell and back a couple of times this year with health challenges.  There were highlights – things I achieved that others would have thought impossible.  I brought a drug into the country (legally) to treat me and that was no small feat with our red tape and the “manyana” attitude.   In between I wrote a book and caused a few upheavals on FB.  I loved a lot.  A lot of people disappointed me.  Others surprised me with their kindness.  I am in a reflective mood – wondering what this next year has in store for me.  I would like to do something for the prison situation, the abandoned buildings and the rats, the homeless and the displaced people … I would like to make the people more aware of rare diseases.  I want to fly a kite and drive an 18 wheeler.   I want an online shop for all the art and crafts I do in bed so that I can pay for my own medication the medical aid rejects. I want to become a better friend, one who spreads cheer around – and I want to live (but not like this).  I want to see an immunologist…there is not one in South Africa.  I want a better chance at living a quality life.  I want to continue to fight for those who have no voice.  I want to be play a role in the international woman’s movement called #IBaredMyChest where women are taught to be Bold, Brave and Ballsy.  I just want to live a full life … one where I can take care of myself and I am not so dependent on others for the simple things like making my bed or helping me shower and dress.  I want a lot of things for next year, but mostly, I want to live a worthwhile life.  What are your dreams or ambitions for next year?