Taking Control over my Health .. it's going to be a ride ....
When doctors hear hoofbeats they only think of horses ... they have forgotten that zebras also have hooves. I am a zebra and I will not be shut up by uncaring doctors or an unhelpful medical review team at Discovery. I have the right to the best medical care with the best doctors for my rare case. No one has the right to humiliate and embarrass me because their egos are so big that they can't handle the fact that I know more about medicine than suits them. Pulling them down from the trees is not a good idea because they talk amongst themselves and you will never get an appointment with that specialist for the next year. What are we to do? Shut up and put up with their shit when our premiums at Discovery are so high? Or do we educate the rarediseases department at Discovery although they are never available to talk to. God, I am here and don't know what I was saying or thinking when I started this so once I am no longer stoned, I hope I remember to come and read what I wrote and if I wrote shit, I hope you will forgive me ... my excuse? I am very very very sstttttooooned
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