New Year - another chance for us to make it right
It is the
last day of 2016.  I look back on it and
realize that it was not all bad.  I have
been to hell and back a couple of times this year with health challenges.  There were highlights – things I achieved
that others would have thought impossible. 
I brought a drug into the country (legally) to treat me and that was no
small feat with our red tape and the “manyana” attitude.   In
between I wrote a book and caused a few upheavals on FB.  I loved a lot.  A lot of people disappointed me.  Others surprised me with their kindness.  I am in a reflective mood – wondering what
this next year has in store for me.  I
would like to do something for the prison situation, the abandoned buildings
and the rats, the homeless and the displaced people … I would like to make the
people more aware of rare diseases.  I
want to fly a kite and drive an 18 wheeler.  
I want an online shop for all the art and crafts I do in bed so that I
can pay for my own medication the medical aid rejects. I want to become a
better friend, one who spreads cheer around – and I want to live (but not like
this).  I want to see an immunologist…there
is not one in South Africa.  I want a
better chance at living a quality life. 
I want to continue to fight for those who have no voice.  I want to be play a role in the international
woman’s movement called #IBaredMyChest where women are taught to be Bold, Brave
and Ballsy.  I just want to live a full
life … one where I can take care of myself and I am not so dependent on others
for the simple things like making my bed or helping me shower and dress.  I want a lot of things for next year, but
mostly, I want to live a worthwhile life. 
What are your dreams or ambitions for next year? 
