The Three Most Important Dates in Life
There are three important dates in one’s life: the day you were born, the day you realized
why you were born and the day you die.
"The timing of
death, like the ending of a story, gives a changed meaning to what preceded it." -
Mary Catherine Bateson
I do not remember the day I was born
but my mother told me that she had her head in a pillow and her arse in the air
while she wailed and kicked her legs.
She had no idea what birth was all about. Of course, after me a lot of children came
via the same route so she got better at it.
The day I realized why I had been
born is the day that it finally got through to me that I can weave magic with
words and by being absolutely authentic in my own life, I can inspire
others. I was born to fight injustice.
According to Mary Catherine Bateson, what precedes my death
will change the meaning of it. Right
from the start, let me tell you that I am unafraid of death. What frightens me is living a life that has
no meaning. So, what precedes my
death? How will I be remembered? The correct ending of my story cannot be “She
died after a long illness bravely borne” because I have not been brave. – I have
done everything but borne this illness bravely.
I have screamed and shouted, cried and howled, researched and followed
leads, joined support groups and have learned more than any medical doctor
other than two professors who actually work on the rare diseases I have. Instead of just sprouting out these long
medical diagnostic terms, I will just say that I have a gene mutation and all
my b- and t-cells are fucked. It is very
hard to live with this illness. It took
the meaning of my life away from me for a time and I had to work hard to get
that meaning back. I have learned that I
do not have to go out and do these things myself. I can use words as my weapon against
injustice.
So what would be the correct ending of this story – of this
life? Don’t bury me with those stupid
words. Bury me with my boots on.
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