It should be a CRIMINAL OFFENCE to load shed Electricity - people die!!

Port inserted into the heart to access veins that no longer work. 

What a night with a 4-hour power outage.  We changed onto the inverter and put the portable oxygen on.  The inverter is not strong enough to last the 4 hours so .... fortunately Patrick left me sleeping and I only woke around 3.30 am, battling to breath with my whole body on fire.  I was in hell itself and would have died if I had not had some training from  Shaun January who visited me at home the night before because I was too ill to deal with doctors at ER or Specialists who know nothing about my disease.  I have been down that road too many times where my symptoms are dismissed because they are not typical or normally sick people.  The joys of having a rare disease.  

Remember Dr January is the only doctor who knows a lot about my illness but who does not have an agreement with Discovery because they did something illegal, Dr January took them to court and he won and Discovery refused to honour any of his claims since then.  So, I get him when I am desperate because I have to pay for him and the medication without being able to claim it back.  Sometimes I have to see two Doctors because the medication is so expensive that I see another GP and ask him to write out the same prescription as what Dr J had given me.  That way Discovery pays for the medication that was first prescribed by Dr January. 

The reason for my lesson the previous night on what to do when I run out of oxygen was because I was alone at home and had to take the oxygen off to open up for the doctor.  By then my SATS had fallen so low that Dr Jan had to help me back to bed, put the oxygen on me, hold my hand and tell me not to move or talk and to breathe in 3 through the nose and six out the mouth ... and try not to panic.  He then prescribed SL fast-acting tranquilliser because he said that struggling for breath puts you into a panic (which was happening) and that would make all the symptoms worse.  Lack of oxygen is fatal.  You die.  

And last night I had the tranquilliser and lay still and quiet while Patrick held my hand.  Eventually, God, Eskom, the municipality or the ANC - whoever, came to the rescue and returned our power that should be a criminal offence to turn off, especially for those whose lives depend on power for oxygen.  It took an hour of medical interventions such as IVI Solucortef and nebulizing and pills and ivi pain medication before I settled.  Damn this country for not even being able to give us the power that we pay for upfront.  #fuckeskom #fuckANC #fuckloadshedding 